Share Your PWSA | USA Volunteer Spotlight - Prader-Willi Syndrome Association

Volunteers are a critical part of the work we do at PWSA | USA! We are incredibly grateful and inspired by the people who step up and offer their time, energy, wisdom, and support to help the families and individuals in the PWS community. In an effort to share our gratitude, we wanted to create a space where the incredible and valuable work of our volunteers can be recognized and praised.

We welcome submissions from people spotlighting someone else, or from volunteers themselves! If you are a volunteer and would like to share the work you’ve done, please submit your story. Be proud of the work you do and let us celebrate you.

Submit Your Volunteer Spotlight

To submit a volunteer spotlight, whether for yourself or someone else, please fill out the form below.

Email*
Name of person submitting
Name of volunteer to spotlight*
Contact email for volunteer (if you know it)
When were they a volunteer? (general time frame is okay)*
What kind of volunteering has this person done with PWSA | USA?*
Why do you want them to be in the spotlight?*
Any words of praise/gratitude you'd like to share?
File
File
File
I agree to PWSA | USA's Media Consent Policy*
I agree to the privacy policy.
By clicking here, I hereby authorize and grant my full permission to Prader-Willi Syndrome Association | USA (PWSA | USA) to collect, use and store any of my personal information, including, without limitation, my likeness, image, voice, and/or statements (“the personal information”) for posting on the PWSA | USA website or social media pages, to use for printed publications or for other purposes that may convey my identity (names may be used unless otherwise specified), diagnosis and other information.

I acknowledge that:

1. I have the authority to grant this authorization and I hereby waive any rights of privacy and other cognizable claims which I may have in connection with the use of the personal information on the PWSA | USA website or social media pages, in printed or other publications, or for other purposes. I understand that this consent is intended to release from liability all personnel of PWSA | USA and is valid unless and until revoked as described below.
2. I understand that the personal information provided to PWSA | USA may reveal sensitive health information about me, including health conditions, diagnosis, and treatment.
3. I understand that any personal information I share with PWSA | USA may be included in various media, including, without limitation, print and digital media, audio and video recordings, photographs, and written statements.
4. I agree that PWSA | USA shall own worldwide copyright and other intellectual property rights in any work product incorporating the personal information. Under this authorization, I assign and transfer to PWSA | USA full worldwide right, title, interest in and ownership of all copyright and other intellectual property rights in such work product without payment of any fees, royalties or other compensation.
5. I understand that I may revoke this authorization at any time by sending an email to PWSA | USA at events@pwsausa.org which identifies the information covered by the revocation. Upon receipt of this notice, PWSA | USA will endeavor to stop using this information within a reasonable time after receipt of such notice.
6. I acknowledge that I am signing this authorization voluntarily and that I am not required to sign this authorization as a condition of eligibility to receive any benefits or services from PWSA | USA. I understand that I may refuse to sign this form.
7. If I have any questions about my privacy rights under this authorization, I understand I may contact PWSA | USA by sending an email to: events@pwsausa.org . The terms of this authorization are not linked to any other agreement, nor to the term of any other agreement, and the terms of this authorization will survive until a request for revocation is submitted as described above.