Rare Aware Art Share Gallery 2024
We are excited to share the artwork submitted for PWSA | USA’s brand new initiative – The Rare Aware Art Share! This virtual art show aims to spotlight the voices of individuals with Prader-Willi syndrome. We hope these pieces offer an opportunity to learn more about each individual, their lives, and their experiences as someone with PWS. Through this art show, our community and beyond can gain a deeper understanding of our loved ones with PWS, while offering them a space to be seen and heard.
To learn about future Rare Aware Art Share submission opportunities, please click HERE.
Rare Aware Art Share Print-on-Demand
The intention of the Rare Aware Art Share is to spread the vision and voice of those living with Prader-Willi syndrome. We have created a way for you to proudly wear and display art created by our participating artists living with Prader-Willi syndrome. Printify is our print-on-demand (POD) platform that allows you to choose from a wide range of products. As we put out the call for our 2024 themes, our catalogue of art will continue to grow as well.
Reasons to POD
- It allows you to spread awareness about Prader-Willi syndrome. (When asked where you found such an interesting piece of art, you will have the opportunity to speak about the artist and PWS.)
- It gives you a chance to show your loved one and community some of the many beautiful creations people with PWS can make.
- It boosts your loved one’s confidence by sporting their art on a product of your choosing.
- It allows you to create and keep a memento of an art piece you love.
How it works
- Visit the Rare Aware Art Share pop-up shop on Printify at https://rare-aware-art-share.
printify.me/products - Browse the collection of already designed products and purchase one if you like it.
- If you don’t see something you like, browse the catalogue of products that Printify offers. Be sure to get the product number, size, and color.
- Decide which art piece you would like to print on this product.
- Email communications@pwsausa.org. Include your name, email, phone number, the information about the product and which art piece you would like to print on this product. If possible, please share pictures and screenshots with us.
- We will create the product of your choice, upload it to the store, and then notify you when it is available for purchase. All of the customer service needs regarding the product, once it is created and ordered, will go through Printify.
*Please note that the prices set are simply for manufacturing and shipping the product. There is no profit being made by the artist or PWSA | USA.
We hope you enjoy and see the value in this aspect of the Rare Aware Art Share. Not only is it a chance to support art that you enjoy, but it can also be a unique and lighthearted way to start those conversations that spread awareness and education on PWS to your community.
What's something unique
about where you live?
Artist
Nicolle, 36, Colorado
I used a program called procreate, to create this digital painting, using layering, masking, and watercolor techniques.
- Inspiration: I wanted to capture the view of the stunning front range of the Rocky Mountains from Denver, Colorado.
- What I wish people understood about Prader-Willi syndrome: I think people often don’t see the many things I struggle with, it’s easy for people to assume my struggles with my weight, or easily getting fatigued are from lack of will power, or just being lazy.
- What I want people to know about me: On the flip side, despite the challenges and struggles I’ve had and continue to deal with because of PWS, they’ve also made me who I am. Everyone has their own challenges in life, and this one is mine. I don’t want to be felt sorry for. My life may look different, but it’s beautiful and full.
Artist
Jessie Siles, 34, Mass, 1 p
- Inspiration: School Staff
- What I wish people understood about Prader-Willi syndrome: That we are special angels.
- What I want people to know about me: I’m a gift from God.
Artist
Conner Kloesel, 9, TX, 1 p
- Inspiration: My love for cats.
- What I wish people understood about Prader-Willi syndrome: The diets and portion control are hard mentally.
- What I want people to know about me: That I try my best in everything I do.
Artist
Lyra Mills, 6, WV, 3 uploads – 1 p, 1 of artist
- Inspiration: Lyra loves to paint, and when she heard she was asked to paint where she lived, we quickly got out our supplies!
- What I wish people understood about Prader-Willi syndrome: Lyra pays a lot of attention to the beauty of this world. She sees the beauty of it. She’s not bogged down with a lot of stress that some kids her age are. She’s in her own world, and we believe PWS makes her a kinder and sweeter person.
- What I want people to know about me: I love my family! Especially my Poppop!
Artist
Patricia Hütter, 38, Austria, 5 p
- Inspiration: I used to colour out mandalas but at one point this was no longer enough. I wanted to let my inspiration run free. Through my love for colours and forms in my drawings I developed a room in which I feel I can express myself. The sense of drawing feels like home to me. Instead of taking a step outside my home, I invite other people to join me in my home.
- What I wish people understood about Prader-Willi syndrome: We always have to be very careful with what we eat and need help managing our diet.
- What I want people to know about me: I’m happy.
Artist
Ansh Metharamani, 20, India, 5p
- Inspiration: I love to draw and it’s my passion to create whatever I see on my drawing sheets. I love vibrant colors in my drawings. I love to draw pictures of cities and Indian Gods and Goddesses.
Artist
Khaled, 4 ½, Nebraska, 1 p
- Inspiration: I wanted to express Egypt hopefully one day I can visit with my parents
- What I wish people understood about Prader-Willi syndrome: That is in not the end of the world really!
Artist
Ann, 21, Mass., 1 p
- Inspiration: I love flowers. Except when the ants get to them.
- What I wish people understood about Prader-Willi syndrome: We can do anything.
- What I want people to know about me: I love learning and reading about western civilization.
Artist
Chloe, 19, Mass. 1 p
- Inspiration: Cape Cod has a lot of beaches and I love going with my staff.
- What I wish people understood about Prader-Willi syndrome: PWS is very rare.
- What I want people to know about me: I am really smart and know a lot about a lot of things.
Artist
Anilton, 20, Mass., 1 p
- Inspiration: My voc. teacher.
- What I wish people understood about Prader-Willi syndrome: PWS is hard.
- What I want people to know about me: I am an athlete.
Artist
Emile, 21, Mass., 1 p
- Inspiration: Because I love hearts and love Latham.
- What I wish people understood about Prader-Willi syndrome: I don’t know.
- What I want people to know about me: I love swimming.
Artist
Emma, 16, Mass., 1 p
- Inspiration: I love purple!
- What I wish people understood about Prader-Willi syndrome: Oh come on.
- What I want people to know about me: I like when my family sends me mail.
Artist
Jess, 21, Mass., 1 p
- Inspiration: I liked the colors and love making crafts.
- What I wish people understood about Prader-Willi syndrome: Sometimes things are difficult for me.
- What I want people to know about me: I love my friends.
Artist
Kai, 20, Mass., 1 p
- Inspiration: I like to paint and whenever I can do a craft it makes me happy and calm.
- What I wish people understood about Prader-Willi syndrome: I guess please don’t change my schedule.
- What I want people to know about me: I love horses and I always do my exercise.
Artist
Sequioa, 21, Mass., 1p
- Inspiration: I love shells and anything with sparkles.
- What I wish people understood about Prader-Willi syndrome: We are really good readers.
- What I want people to know about me: I love styling my hair.
Artist
Sequioa and Ben, Mass., 1p
- Inspiration: Me and my friends love Latham and we are surrounded by water all the time on Cape Cod.
- What I wish people understood about Prader-Willi syndrome: We are creative and have lots of love for everything good.
- What I want people to know about me: We are all nice people.
Artist
Ashley, 16, Mass., 1p
- Inspiration: Brittni said that I should make a craft about Cape Cod so I did.
- What I wish people understood about Prader-Willi syndrome: Everything will be okay.
- What I want people to know about me: Sometimes I like to act.
Artist
Rachael, 18, Mass., 1p
- Inspiration: Cape Cod
- What I wish people understood about Prader-Willi syndrome: We are just like you.
- What I want people to know about me: I love fashion and my earing collection.
Artist
Joselyn, 21, Maryland, 1p
- Inspiration: My dog and my staff.
- What I wish people understood about Prader-Willi syndrome: Sometimes I get frustrated but my staff always help me.
- What I want people to know about me: I love to clean and I am a nice person.
Artist
Maya Servais, 20, Minn., 1p
- Inspiration: What inspired me to create my artwork is the city I live in Stillwater and lake Elmo Area.
- What I wish people understood about Prader-Willi syndrome: The one thing I wish people to knew about Prader Willi Syndrome is the compulsive behavior such as picking at the skin and being hungry all of the time.
- What I want people to know about me: The one thing I wish people knew about me is I like dancing with my friends and I love animals.
Artist
Lenny Shang, 11, TX, 5p
- Inspiration: Lenny was born in China and was diagnosed with PWS at the age of five. He and his mother spent seven difficult years in China and immigrated to the United States at the age of seven.
- What I wish people understood about Prader-Willi syndrome: I hope that more and more people around the world can pay attention to PWS. I also hope that more people can know more about PWS.
- What I want people to know about me: My genes are missing, but my soul is complete. I want to be a famous artist!
Artist
Alexandre Ciríaco
- Inspiration: Foi na altura do Covid, o meu filho não tinha nada que fazer e encontrámos esta actividade que ele adora
- What I wish people understood about Prader-Willi syndrome: A síndrome de Prader-Willi é uma condição complexa e multifacetada que merece maior visibilidade e compreensão. Embora seja menos conhecida que outras síndromes, ela afeta significativamente a vida de muitas pessoas e suas famílias.
- What I want people to know about me:Gostaria que soubessem que a Prader Willi é mais do que apenas obesidade: A obesidade é um dos sintomas mais visíveis da síndrome de Prader-Willi, mas cada pessoa é única. O apoio familiar é essencial. A pesquisa contínua é crucial para o desenvolvimento de novos tratamentos e terapias mais eficazes. Aumentar o conhecimento sobre a síndrome de Prader-Willi é fundamental para melhorar a qualidade de vida das pessoas afetadas.
Artist
Anjani Goel, 12.5, India, 3p
- Inspiration: A design on my t shirt.
- What I wish people understood about Prader-Willi syndrome: We need to be dealt with patience.
- What I want people to know about me:I also want to make friends.
Artist
Ahmed Hosam, 16, Egypt, 1p
- Inspiration: My mother helped me and inspired me to turn my story into a work of art that I share with my friends to support them.
- What I wish people understood about Prader-Willi syndrome: Life with PWS is not easy, but it is full of wonderful challenges. With PWS, your life changes for the better.
- What I want people to know about me: I am handsome, wonderful, and funny. I love all people, but I ask them to help me so that I can face all these challenges every day.
Artist
Ayah Hassanein, 16, Egypt, 1p
- Inspiration: My mother.
- What I wish people understood about Prader-Willi syndrome: Healthy diet and not offering me candy.
- What I want people to know about me: I am a loving, trustworthy and caring person.
Artist
Ryan Casey, 20, CA, 1p
- Inspiration: This pieces is inspired by Ryan’s local area. Southern California is great because we have so much close to us, and this painting includes a few – mountains, including snow for skiing, the pacific ocean, poppy fields (our state flower), sunny weather, and of course Disneyland!
- What I wish people understood about Prader-Willi syndrome: I wish people knew how important growth hormone is; I want more people educated about it.
- What I want people to know about me: That I’m nice and kind, and fun to be with.
Artist
Freya Smyth, 13, 1p
- Inspiration: I live near the redwood forest. The trees make me feel close to home.
- What I wish people understood about Prader-Willi syndrome: That a little tiny part of the 15th chromosome is gone.
- What I want people to know about me: That I have something called Prader-Willi syndrome and I am on the basketball team. I am in 7th grade, I have five dogs, I love horses, am really good at puzzles, and I am good at swimming.