PWSA | USA's 2022 Family Support Campaign begins June 1, 2022 and will last through July 31, 2022
At all ages and stages, PWSA | USA’s Family Support team is always here to offer HELP + HOPE.
From your first days in the NICU, to your loved one’s school IEP, food-seeking and behavioral needs, guardianship, and residential referrals, we are responding to your evolving challenges and needs 24 hours a day, 7 days a week, 365 days a year. PWSA | USA’s Family Support team provides the encouragement, support, and resources individuals and families need to thrive in the face of a rare genetic condition.
June 1st through July 31, 2022, you can support PWSA | USA in the multiple ways we give HELP + HOPE to our families through our three pillars (Family Support, Advocacy and Awareness, and Research). During these two months, we will share new resources for our PWS community, including:
- Social stories to help your loved one living with PWS navigate different social experiences
- A webpage dedicated to guide families in the NICU after receiving their child's PWS diagnosis
- A webpage that will offer healing, hope, and acceptance for those in need of any type of grief support
- Personal stories from families and our Family Support team
- And so much more!
Be on the lookout for our Family Support Campaign Hub and these new tools to help assist your family on your PWS journey. We will send out weekly emails with new resources each week. If you are not signed up to receive PWSA | USA emails, you can find our newsletter form HERE.
Thank you for your support!
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Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.