PWSA | USA Pictures and Videos Request - Prader-Willi Syndrome Association

PWSA | USA is in need of pictures and videos on your loved one living with PWS. We constantly like to refresh our stories with new and diverse faces and have the need of creating a library of photos and videos shared by parents. If you have any pictures and/or videos of your child (young or older) that fit this criteria below, please click here to upload. We would love to share your experiences with our community and create awareness.

We are in search of pictures and videos that evoke emotion and show us how hard your children work!

– Kids in action
– Working out
– During therapy
– Meeting milestones
– At a Doctor’s appointment (non-revealing)
– Achievements
– Family photos
– PWS Friendships
– Assets should be as high resolution as possible
– Closeups and distance shots
– Inspiring quotes that carry you through the journey
– A quick line of what you would like the world to know about your child and
– Your child’s name

For the protection of your child, please do not use pictures of children that are not completely clothed or that can appear to be revealing in nature.

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PWSA | USA Pictures and Video Request Form

Share a picture or video here
Share an inspirational quote that carries you through your journey.
Share a quick line of what you would like the world to know about your child and PWS.
Your Child's Name and Age:
Your Name:
Your Email Address:
Consent
I agree to PWSA | USA's Media Consent Policy
By clicking here, I hereby authorize and grant my full permission to Prader-Willi Syndrome Association | USA (PWSA | USA) to collect, use and store any of my personal information, including, without limitation, my likeness, image, voice, and/or statements (“the personal information”) for posting on the PWSA | USA website or social media pages, to use for printed publications or for other purposes that may convey my identity (names may be used unless otherwise specified), diagnosis and other information.

I acknowledge that:

1. I have the authority to grant this authorization and I hereby waive any rights of privacy and other cognizable claims which I may have in connection with the use of the personal information on the PWSA | USA website or social media pages, in printed or other publications, or for other purposes. I understand that this consent is intended to release from liability all personnel of PWSA | USA and is valid unless and until revoked as described below.
2. I understand that the personal information provided to PWSA | USA may reveal sensitive health information about me, including health conditions, diagnosis, and treatment.
3. I understand that any personal information I share with PWSA | USA may be included in various media, including, without limitation, print and digital media, audio and video recordings, photographs, and written statements.
4. I agree that PWSA | USA shall own worldwide copyright and other intellectual property rights in any work product incorporating the personal information. Under this authorization, I assign and transfer to PWSA | USA full worldwide right, title, interest in and ownership of all copyright and other intellectual property rights in such work product without payment of any fees, royalties or other compensation.
5. I understand that I may revoke this authorization at any time by sending an email to PWSA | USA at events@pwsausa.org which identifies the information covered by the revocation. Upon receipt of this notice, PWSA | USA will endeavor to stop using this information within a reasonable time after receipt of such notice.
6. I acknowledge that I am signing this authorization voluntarily and that I am not required to sign this authorization as a condition of eligibility to receive any benefits or services from PWSA | USA. I understand that I may refuse to sign this form.
7. If I have any questions about my privacy rights under this authorization, I understand I may contact PWSA | USA by sending an email to: events@pwsausa.org . The terms of this authorization are not linked to any other agreement, nor to the term of any other agreement, and the terms of this authorization will survive until a request for revocation is submitted as described above.