Attention PWSA | USA family and friends!
We are working on a special project for our PWS community and are in need of pictures of you and your loved ones. We are creating a PWSA 2022 Calendar, which will be available in the next couple of months, and will include photo collages on each page. If you have a loved one living with PWS, please fill out PWSA | USA's Media Release Form (download below) and send it, along with your picture, to news@pwsausa.org. We are hoping to receive a variety of seasonal pictures, e.g. celebrating holidays, summer fun, playing in the snow, etc. In this calendar, we also want to celebrate YOU: the parents, grandparents, and siblings who give support to our loved ones living with PWS. Please share those pictures with us as well! Please send in pictures no later than Wednesday, October 6, 2021.
Be on the lookout for more details about when these calendars will be available for purchase. We can't wait to share this with you.
If you have any questions, please reach out to news@pwsausa.org. Thank you for your help!
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Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.