Dear New Parent:

If your child has recently been diagnosed with Prader-Willi syndrome, we would love to provide you with a bundle of materials, appropriately called The Package of Hope. This encouraging package includes a variety of publications we believe will help answer many of your questions and offer guidance on critical issues such as:

  • Nutrition
  • Medical concerns
  • The use of Growth Hormone as a treatment for Prader-Willi syndrome

We would also like to present you with a free one-year PWSA | USA membership (USA only) including benefits such as:

  • PWSAย Parent Mentoring Program
  • Age-specific online support communities

Please fill out and submit the Prader-Willi syndrome diagnosis form so we can contact you with details on these helpful programs and materials!

New Diagnosis Form

  • Date Format: MM slash DD slash YYYY
  • In order to develop tools to empower our diverse rare disease community, we are asking our participants to please select the response that best reflects their race and ethnicity in the following questions.