Events and Fundraisers
Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
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Latest News
Sharing Our Rare: Leslie and Corey Fuller
Rare Disease Day, which falls on February 28th each year, helps shine a light on the roughly 7,000 recognized rare diseases. To assist in this effort, we have been asking our community to tell us how you "share your rare" for Prader-Willi syndrome. One unique and impactful way we have heard from families is how...
Sharing Our Rare: Sue Colon
Rare Disease Day, which falls on February 28th each year, helps shine a light on the roughly 7,000 recognized rare diseases. To assist in this effort, we have been asking our community to tell us how you "share your rare" for Prader-Willi syndrome. One unique and impactful way we have heard from families is how...
PWSA | USA Accepting Convention 2023 Scholarship Applications
Thanks to the generosity of an anonymous donor, PWSA | USA is offering scholarships for our upcoming 2023 National Convention, June 21-24, 2023, in Orlando, FL. Guidelines for submitting a scholarship application are as followed: You must be a first-time PWSA | USA National Convention attendee Scholarship funds can be applied toward a Conference registration,...