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Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
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Latest News
Staying Safe in the Heat
Summer is well underway, and parts of the U.S. are experiencing extreme temperatures and high heat index warnings. While these conditions can pose a threat to anyone, they especially put our loved ones with PWS at risk for heat stroke and heat exhaustion. Due to the dysfunction of the hypothalamus, Individuals with PWS struggle to...
Empowering Diversity and Inclusion for the PWS Community
In a significant step towards fostering equity and inclusion within our Prader-Willi syndrome (PWS) community, we are pleased to announce a collaborative initiative aimed at improving the standard of care and support for marginalized individuals living with PWS and their families. This initiative, undertaken with the active involvement of several community members, seeks to ensure...
Ask Nurse Lynn: Behavior Management and IEP
Question: Male, 17, Deletion How can I address my son’s behavior? Lately he gets mad and starts throwing things around, the more I ask him to stop the angrier he gets. If I ground him, he does exactly the opposite of what I ask him to do. Also, at school, teachers have told me should...