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Latest News
Sleep Disturbances in Prader-Willi Syndrome
Contributed by Lynn Garrick, RN Sleep health is essential for everyone. It is just as important to take care of ourselves as parents and caregivers as it is for those living with Prader-Willi syndrome (PWS). We understand that disordered sleep has implications for cognitive outcomes, mental and physical health, and work and school performance. Sleep...
Residential Spotlight: Abilities Midwest in Wisconsin
Written by Kim Tula, MS, CSW Abilities Midwest is an adult residential provider in Wisconsin that only serves individuals diagnosed with Prader-Willi syndrome (PWS). They currently operate three PWS-specific group homes: One in River Falls, WI and two in Watertown, WI. All of these homes are licensed through the state of Wisconsin as an Adult...
Sharing Our Rare: Leslie and Corey Fuller
Rare Disease Day, which falls on February 28th each year, helps shine a light on the roughly 7,000 recognized rare diseases. To assist in this effort, we have been asking our community to tell us how you "share your rare" for Prader-Willi syndrome. One unique and impactful way we have heard from families is how...