Events and Fundraisers
Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
Reserve your stay TODAY at Compass by Margaritaville, Anna Maria Island, FL *Limited number of rooms available
Latest News
How Utah is Enhancing Food Security for Prader-Willi Syndrome Individuals: 2023 PWS National Convention
Contributed by Christopher Rich, Utah PWS Association Among the exhibitors at this year's PWSA | USA National Convention was the Utah PWS Association, which focused on food security and its role in managing PWS symptoms. The exhibition booth showcased practical strategies and innovative solutions to create a controlled environment, emphasizing the importance of food security...
Share Your School Lunch Tips
On Friday, July 28, 2023, PWSA | USA's Special Edition Pulse will focus on back-to-school and offer helpful tips from our Family Support team as well as how to best utilize our School Success resources. We also want to hear from YOU, our PWS community, on what has worked for you / your loved one...
Gedeon Richter Now Recruiting for KITE-PWS Clinical Trial
You or someone you love could be part of developing new therapies for Prader-Willi syndrome. Learn about Gedeon Richter's research study KITE-PWS, also known as RGH-706-003, to evaluate an experimental drug for hyperphagia in people with Prader-Willi syndrome. The oral drug RGH-706 works by blocking melanin-concentrating hormone (MCH), which is a key part in the...