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Holiday Gift Ideas: Sensory Edition
Prader-Willi syndrome is a spectrum disorder, and the spectrum is broad. Developmental milestones don’t always apply to our loved ones with PWS, not in the typical ways. That certainly does not mean they aren’t developing and learning new skills. It simply means that sometimes, especially for our emotional well-being, we need to toss those “age-appropriate”...
Simple Self-Care
Contributed by Anne Fricke, mom to Freya (living with PWS) What Does Self-Care Look Like for You? For some, self-care is regular massage appointments and weekend getaways. Others sign up for dance classes, spend hours on a golf course, or go out for fancy dinners and nights on the town. These are all great ways...
Simple Ways to Adjust Recipes for Prader-Willi Syndrome
Food can't be avoided. Yet, with a diagnosis of Prader-Willi syndrome, our relationship to food must shift dramatically. Some may see this as a blessing, an opportunity to learn how to make better food choices. Others may feel the burden instantly. Hopefully, with some adjustments and education, the needed shifts will feel less like a...