Events and Fundraisers
Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
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Latest News
Special Webinar: Learn How You Can Help Transform the Lives of Those with Prader-Willi Syndrome!
Join us on Tuesday, March 22nd, 2016 1:00PM – 2:00PM EDT Learn about how PWSA (USA)’s services are helping families and loved ones and how YOU can help PWSA (USA) Save and Transform Lives with an eWalk or On The Move event! Featuring: Evan Farrar, Crisis Intervention and Family Support Counselor Bonnie Shelley, Coordinator of...
Research Announcement: Report on the Zafgen Meetings
Due to the results of the phase 3 clinical trial on the Zafgen drug beloranib, a meeting was recently held in Miami to review the data and meet with thrombosis experts. This was followed up by a meeting with PWS caregivers, many of whom had children on the clinical trial. As reported in the webinar...
PWSA (USA)’s Webinar Series Continues
Prader-Willi Syndrome: Adulthood 101 With a presentation by Elizabeth Roof, M.A., on Monday, February 22, 2016, at 7:30 p.m., EST. If you were unable to attend the 2015 conference, or missed this presentation while there, you will be glad to hear it now. In Prader Willi Syndrome: Adulthood 101, Ms. Roof will present on supports...