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Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
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Latest News
Warning โ Medication combinations may fatally impair breathing in PWS!
We want to remind parents that impaired breathing is a leading cause of death in people with PWS. After the recent unexpected death at home of a young person with PWS, we want to alert parents and professionals to the potential risk factors with combinations of medications, especially after surgery. PWSA (USA) continues to collect...
Please Participate in Research on PWS Caregiver Stress
I would like to invite you to participate in a research study on the ‘Relationship between caring for individuals diagnosed with Prader-Willi syndrome (PWS) and caregiver stress’. The results will provide vital information to caregivers, service providers, and policy makers on strategies and supports needed in the care of individuals with PWS. The survey will...
A PWS Family’s Story
For 19 years, the Angel Drive had provided critical funding to help thousands of PWS families. Please see one family’s story below. We are “Saving and Transforming Lives”. Hi! I would like to introduce you to my crazy beautiful family. Moises (daddy) Breanna (myself/aka mommy) Madison (10.5 yrs.) Noah (6.5 yrs. diagnosed with cerebral palsy)...