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Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
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Latest News
Tips for First Time Sleep Studies
Contributed by Jennifer Andrews A diagnosis of PWS requires families to learn all sorts of new things, among them medical procedures we may not be familiar with. A fairly common one, the sleep study, can be a little daunting when you don’t know what to expect. Prader Willi Syndrome can manifest with a variety of...
How To Travel with Refrigerated Medication
Contributed by Anne Fricke There was a time when we thought the refrigeration needs of Freya’s growth hormone alone would hinder our travel and keep us home more than we desired. We love our home and enjoy being here, but traveling is an important aspect of life for my family. We have had to make some...
2025 International PWS Conference Announcement!
PWSA | USA is pleased to announce a new partnership with the Foundation for Prader-Willi Research (FPWR) and the International Prader-Willi Syndrome Organisation (IPWSO) to host United in Hope – an International PWS Conference to be held June 24-28, 2025 at the Arizona Grand Resort & Spa in Phoenix, Arizona! The conference theme, “United in Hope”...