Events and Fundraisers
Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
Reserve your stay TODAY at Compass by Margaritaville, Anna Maria Island, FL *Limited number of rooms available
Latest News
PWS Awareness Month Week 2 Mini Blog โ Managing an Outburst
My loved one with PWS is having a behavior outburst, tantrum or meltdown. What can I do? Being prepared and working with the individual with PWS to understand a triggering situation while helping them manage their anxiety can make difficult situation much easier to handle. Use a calm tone of voice. Yelling or...
PWS Awareness Month Week 2 Mini Blog – Behavioral Outbursts
Many individuals with Prader-Willi syndrome face emotional and behavioral challenges that present as outbursts. However, whether it’s caused by a change in routine or the presence (or absence) of food outbursts can be managed. For example, maintaining food security and adhering to a set schedule for snacks and meals will decrease food-related anxiety, and providing...
Prader-Willi Syndrome Awareness Month
By Stacy Ward May is National PWS Awareness Month! PWS Awareness Month came to be thanks to the efforts of Amy Porter and Prader-Willi California Foundation members, Tom and Renay Compere, who brought the syndrome and the needs of the PWS community to the attention of Republican Congressman Ed Royce and Democratic Congresswoman Jane Harman. The...