Individuals and families affected by PWS who are living in Egypt and the Middle East now have an established community to find help and hope. PWSA Egypt and Middle East was officially founded on June 1, 2023 by Walaa Mohamed, mom to Ahmed, 13, living with PWS. PWSA Egypt & Middle East will serve the entire Arab and Middle East region.
Over the past two years, PWSA | USA has assisted with laying the foundation by hosting several zoom sessions to connect specialists in the PWS world with Walaa and several other PWS family members in Egypt. A special thank you to the International Prader-Willi Syndrome Organisation (IPWSO) for providing grant funding to start the official organization.
The organization is now in the process of finalizing its official name and registration, and is preparing for the first parent and caregiver kick-off workshop in Egypt. To learn more about PWSA Egypt & Middle East, click the buttons below.
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Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.