ECHO 4 PWS: Cardiac Concerns
When: Thursday, August 15, 2024 at 5:00 PM EST
Where: Virtual/Zoom Video
This series is for health care providers only
Register below for our next ECHO 4 PWS webinar, “Cardiac Concerns with Dr. Jim Loker.”
PWSA | USA's - ECHO 4 PWS Health Care Provider Series
PWSA | USA launched our new Health Care Provider Project ECHO Series, ECHO 4 PWS, in 2023. We are proud to offer this opportunity to health care professionals who work with patients affected by Prader-Willi syndrome (PWS) and to be the first PWS organization to implement Project ECHO® in the United States.
Our next healthcare ECHO topic will focus on Cardiac Concerns presented by Jim Loker, MD, Clinical Professor, Department of Pediatric and Adolescent Medicine at Western Michigan University, followed by a 20-minute case study on PWS (speaker to be determined).
PWSA | USA’s Health Care Provider Project ECHO Series will touch on a wide range of healthcare topics in the PWS space and will be available for all health professionals across our network including (but not limited to): Geneticists, Pediatric Endocrinologists, Neonatologists, Nurses, Pediatricians, Endocrinologists, Psychiatrists, Psychologists, Social Workers, Occupational Therapists, Pulmonologists, Orthopedic Surgeons, Dieticians, Physiotherapists, Speech and Language Therapists, Medical Students and Professional Caregivers.
While this ECHO series is only for health care providers to attend, recordings of the webinars are available for our PWS families to view HERE.
Scroll below to find more ECHO 4 PWS webinar opportunities.
Speaker
Jim Loker, MD, Clinical Professor, Department of Pediatric and Adolescent Medicine at Western Michigan University
Upcoming ECHO 4 PWS Webinars
ECHO 4 PWS Webinar: Feeding and Swallowing
September 11, 2024, at 5:00 p.m. EST
Join PWSA | USA for our September ECHO 4 PWS Webinar, Feeding and Swallowing with Roxann Diez Gross, PhD, CCC/SLP, and Ann Scheimann, MD, MBA. This presentation is designed to enhance the knowledge of the assessment and management of the clinical features of PWS and increase the clinical knowledge of the management of feeding /swallowing issues using care-based learning through a multi-disciplined approach.
ECHO 4 PWS Webinar: Exercise Physiology
November 11, 2024, at 5:00 p.m. EST
Join PWSA | USA for our November ECHO 4 PWS Webinar, Exercise Physiology with Dr. Daniela Rubin. More details coming soon!
LEarn More about PWS Research
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Help Needed: Caregivers of Children with Prader-Willi Syndrome and Repetitive Verbal Behavior
Kasey Bedard, PhD, and her team at The Chicago School are seeking caregivers of children diagnosed with Prader-Willi Syndrome (PWS) who exhibit repetitive verbal behavior for a research study at The Chicago School. This study, part of a dissertation project, aims to test interventions that caregivers can implement at home. Study Details: – Duration: 2-3 […]
Fueling Hope: Aardvark Therapeutics’ $85M Boost Powers Breakthrough PWS Treatment
Aardvark Therapeutics has just hit a major milestone with an exciting $85 million Series C financing round! Led by Decheng Capital, with additional participation from several investors, including PWSA | USA, this funding is set to drive the development of ARD-101, a groundbreaking treatment for hyperphagia in Prader-Willi syndrome patients. ARD-101 showed promising early trial […]
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.