ECHO 4 PWS: Orthopedics
When: Tuesday, December 17, 2024 at 5:00 PM EST
Where: Virtual/Zoom Video
This series is for healthcare providers only
PWSA | USA's - ECHO 4 PWS Healthcare Provider Series
PWSA | USA launched our new Healthcare Provider Project ECHO Series, ECHO 4 PWS, in 2023. We are proud to offer this opportunity to healthcare professionals who work with patients affected by Prader-Willi syndrome (PWS) and to be the first PWS organization to implement Project ECHO® in the United States.
Our next healthcare ECHO topic will take place on Tuesday, December 17, 2024, at 5:00 p.m. EST and will focus on Orthopedics and PWS presented by Dr. Harold van Bosse, followed by a 20-minute case study on PWS.
PWSA | USA’s Healthcare Provider Project ECHO Series will touch on a wide range of healthcare topics in the PWS space and will be available for all health professionals across our network including (but not limited to): Geneticists, Pediatric Endocrinologists, Neonatologists, Nurses, Pediatricians, Endocrinologists, Psychiatrists, Psychologists, Social Workers, Occupational Therapists, Pulmonologists, Orthopedic Surgeons, Dieticians, Physiotherapists, Speech and Language Therapists, Medical Students and Professional Caregivers.
While this ECHO series is only for healthcare providers to attend, recordings of the webinars are available for our PWS families to view HERE.
Scroll below to find more ECHO 4 PWS webinar opportunities.
Speaker
Harold van Bosse, MD
ECHO 4 PWS is Sponsored By
LEarn More about PWS Research
New Project Seeks to Identify Characteristics that Predict Challenging Behaviors in PWS
Individuals with PWS often exhibit rigidity, obsessive-compulsive tendencies, emotional outbursts, as well as unusual thoughts and behaviors. However, the onset and severity of these behaviors vary among individuals with PWS depending on age, genetic subtype, and other factors. A new study by Dr. David Evans at Bucknell University aims to identify early risk factors for […]
TREND Pulse Report: PWS and Emotional and Behavioral Patterns
TREND Community released its latest report on PWS and Emotional and Behavioral Patterns. This report analyzed conversations parents and caregivers were having on the topic of emotional and behavioral issues. In a testament to the dedication and connection of parents to their loved ones, the largest primary emotion category was “Happiness”, with “Love” being the […]
Trial Transitions and Testimonials
A month ago, Freya transitioned from the 77-day double-blind portion of the Pitolisant trial to the open-label extension, which will last at least a year or as long as she is willing to participate – whichever is longer. If you’ve been following this blog series, you know I went into this with feelings of trepidation […]