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PWSA of Ohio Family Activity Day

Recreation Unlimited 7700 Piper Road, Ashley, OH, United States

If you're interested in attending, please download and fill out the registration form by clicking HERE.  

PWSA | USA Sleep Summit

To learn more about sleep issues in individuals living with PWS, PWSA | USA created a six-month program entitled Sleep Issues in Prader-Willi Syndrome: A Deep Dive for Parents & Practitioners, which included monthly focus group discussions led by a trained facilitator. The program will conclude with a full day PWSA | USA Virtual Sleep […]

Country for a Cure

Marjorie Park @ Fiddler’s Green Amphitheatre 6331 S Fiddlers Green Cir, Greenwood Village, CO, United States

LEARN MORE HERE

Rare(ly) Missed Opportunities: Your PWS Financial Guide

Join us to learn about PWSA | USA's newest initiative "Rare(ly) Missed Opportunities: Your PWS Financial Guide." During this interactive webinar, we will walk you through navigating our newest web based resource to find waivers in your state, financial literacy webinars and downloadable documents. REGISTER IN ADVANCE HERE

2023 Advocacy in Action Kick-Off Webinar

2022 was a groundbreaking year for PWSA | USA's Advocacy efforts and it was thanks to you, our amazing community and volunteers. As we step into a new year, we are excited to share more advocacy opportunities on the horizon. Please join us Tuesday, January 17, 2023 at 8:00 p.m. EST with PWSA | USA […]

PWSA | USA Behavior Summit

There's still time to register for PWSA | USA's first-ever Behavior Summit, which will be held Tuesday, January 24, 2023 from 2:00 - 7:45 p.m. EST! The Summit will include several webinar presentations from specialists who are experts in behavior issues, and is for both parents and healthcare providers. During this FREE virtual event, you […]

2023 Clint Hurdle Hot Stove Dinner

Anna Maria Island FL, United States

PURCHASE YOUR TICKET TO THE 9TH ANNUAL CLINT HURDLE HOT STOVE DINNER HERE Get ready for some fun in the sun! For those interested in attending the 2023 Clint Hurdle Hot Stove Dinner, you can now make your hotel reservations in our room block HERE. The event will be held Saturday, March 25, 2023 at […]

PWS Jeopardy!

When: Monday, May 15, 2023 | Games at 7:30 pm EST and 9:00 pm EST Where: Zoom Cost: Free! To celebrate and raise awareness for PWS Awareness Month, bring your family, friends, and brain power for a fun night of PWS Jeopardy. FREE for all to attend! REGISTER BELOW: Click Here to register to attend […]

PWSA | USA 2023 National Convention

We invite you to join us June 21 – June 24, 2023, in sunny Orlando, Florida at the Hilton Orlando Buena Vista Palace. PWSA | USA’s Convention will provide exciting opportunities to learn, connect (and reconnect), and hear about the latest PWS research. Taking place in Orlando, FL on June 21-24, 2023, this world-class event will […]

FDA Externally-Led Patient-Focused Drug Development Meeting

Hilton Orlando Buena Vista Palace 1900 East Buena Vista Drive, Lake Buena Vista, Florida, United States

Your Voice Will Make a Difference! Prader-Willi Syndrome’s First Externally Led Patient-Focused Drug Development Meeting will take place June 22, 2023 from 12:00 - 4:30pm EST both Virtually Via Zoom and In-Person at the Hilton Orlando Buena Vista Palace. CLICK HERE TO REGISTER TO ATTEND THE EL-PFDD MEETING VIRTUALLY The Prader-Willi Syndrome community is invited […]

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