Zahra’s Night of Light
April 5 @ 6:00 pm
$125When: Saturday, April 5, 2025 | 6:00 PM
Where: Historical Hall (608 Old Post Road, Bedford NY)
CLICK HERE TO REGISTER AND BECOME AN EVENT SPONSOR
Join us for the inaugural Zahra’s Night of Light at the Historic Hall in Bedford, NY! This community event brings us together to support children like Zahra, living with Prader-Willi Syndrome. Enjoy an evening filled with entertainment, food and drinks, a silent auction, and more.
Every dollar raised will go directly to the Prader-Willi Syndrome Association (PWSA | USA) to fund advocacy, family support, and vital research to find a treatment for PWS.
PWS is a rare genetic condition that occurs in 1:15,000-30,000 live births and begins with low muscle tone, feeding difficulties, and delayed development. By childhood, it evolves into a relentless hunger that dominates daily life in addition to behavioral and academic challenges. For Zahra, this syndrome is just one part of who she is, but it significantly impacts her and our family’s world, now and forever.
There’s no cure or treatments, but with your support, we can give her—and others—a chance at independence and freedom from hunger.
Join us on April 5th for an unforgettable evening of hope and impact!