PWS Symposium: Recognizing and Addressing Hyperphagia Early in Prader-Willi Syndrome
April 26 @ 12:00 pm - 1:30 pm
Join PWSA | USA, The Endocrine Society, and Medscape Education for this live symposium on Prader Willi syndrome (PWS) where experts will explore the huge burden that hyperphagia represents for patients with PWS, their families, and their caregivers. They will delve into the pathophysiology and complications of hyperphagia and look to the future in a discussion around the current and emerging treatment options for hyperphagia in PWS. By incorporating patient case examples and the latest data, the speakers will exchange ideas around best practices to ensure improved quality of life for patients with PWS and those around them. There will be the opportunity for attendees to ask questions of the experts during this symposium. This educational activity is intended for an audience of pediatricians, endocrinologists, psychiatrists, geneticists, nurse practitioners, physician assistants, nurses, and other clinicians who care for patients with PWS in the United States.
Speakers Include
Shawn McCandless, MD, Chair, Department of Genetics and Metabolism (Children’s Hospital Colorado), Professor and Section Head, Genetics and Metabolism (University of Colorado Anschutz Medical Campus)
Parisa Salehi, MD, Associate Professor, Division of Endocrinology & Diabetes, Clinical Director, Prader-Willi Syndrome Clinic (Seattle Children’s)
Deepan Singh, MD, Child, Adolescent, and Adult Psychiatrist, Vice-Chair of Ambulatory Psychiatry Services (Maimonides Medical Centre)
Additional Details
In support of improving patient care, Medscape, LLC is jointly accredited with commendation by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
For Physicians
Medscape, LLC designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
For Nurses
Awarded 1.0 contact hour(s) of nursing continuing professional development for RNs and APNs.
Supported by an independent educational grant from Soleno Therapeutics Inc.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.