Free Webinar: Creating Financial Security for a Loved One with PWS with Ivailo Grigorov
May 14 @ 12:00 pm - 1:00 pm
When: Wednesday, May 14, 2025 | 9:00 AM PT / 12:00 PM ET
Where: Virtual via Zoom
Free for anyone to attend!
About Ivailo Grigorov
Ivailo Grigorov is a Financial Advisor and special needs parent to Lucca, who is 8 years old and has a diagnosis of Prader-Willi Syndrome. After 15 years as a Store Director at Target, Lucca inspired Ivailo to change career paths and pursue special needs planning. Ivailo realized that families can benefit from a comprehensive plan that can guide them through the years and can ultimately maximize a child’s overall quality of life. Ivailo’s team primarily works with families who have a loved one with disabilities that will require some support not only now but in the distant future. There are many common mistakes in traditional planning that if not properly addressed can hinder access to programs and benefits. Ivailo’s goal is to serve as the quarterback for the family’s planning, to educate on the most efficient ways to save to optimize and protect our loved ones’ futures and ultimately provide a piece of mind. Join us for this educational workshop to learn more about special needs planning. Topics covered will include an overview of SSI & SSDI, Medicaid & Waivers, ABLE accounts, special needs trusts, and other important considerations to help family members better understand how planning for a child with special needs is different both legally & financially.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.