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Category: Ask Nurse Lynn

Ask Nurse Lynn Infant Growth PWSA USA

Ask Nurse Lynn: Infant Growth

Question: Female, 5 months old, Deletion subtype My baby is 5 months old. The growing is not fast, 5 month looks like 2 months.What do I do? Nurse Lynn’s Response: I’m sorry to hear about your concerns regarding your baby’s growth, here are some suggestions: Consult with a Pediatric Endocrinologist: Schedule regular check-ups to monitor...

Ask Nurse Lynn "Seizures" PWSA USA

Ask Nurse Lynn: Seizures

Question: Female, 40 years old, Deletion subtype My daughter had 2 seizures 15 years ago. The doctor wants to now take her off all preventive meds. How do we know if the meds are preventing seizures? She is scheduled for a 3-day EEG next week and has reduced her meds by 50%. We have lost...

Ask Nurse Lynn: Aging in PWS

Question: Female, 62 years old, unknown subtype My sister has PWS. We live in Quebec Canada. There is so little information about how people with PWS age. We have reduced her meds recently due to aging (Bupropion by half and she is now taking Lorazepam to handle side effects). She takes medicine due to pre-diabetes....

Ask Nurse Lynn: Bowel Movements and Picking

Question:  Female, 22 years-old, Unknown subtype I’m concerned about gastroparesis. I give my daughter one stool softener a day. Ok with her doc. She does not empty her stomach without picking at her bottom to stimulate. How do I address this issue? Nurse Lynn’s Response: This is actually very common for our individuals to rectal...

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