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PWSA Blog

2nd Annual Answers for Audrey

We want to share a heartfelt thank you to Michelle Spring and her family for hosting their 2nd Annual Answers for Audrey Trivia Night in support of PWSA | USA and in honor of Michelle's daughter, Audrey, who is living with PWS. "We held our 2nd annual (Trivia) Answers for Audrey and it was a...

Recognizing Sleep-Related Symptoms of PWS

World Narcolepsy Day is recognized each year on September 22nd. Narcolepsy is a chronic neurological condition that impairs the brain’s ability to regulate the sleep-wake cycle. It affects about one in 2,000 people. Continued research suggests that children and adults with PWS experience sleep disorders including chronic insomnia and narcolepsy with cataplexy to a greater...

A Look into Camelot Society’s Group Home

Contributed by PWSA | USA Alterman Family Support Counselor, Kim Tula, MS, CSW  Camelot Society is an adult residential provider in the State of Washington that serves individuals diagnosed with Prader-Willi Syndrome (PWS).  They currently operate one Group Training Home (GTH) and eight Supported Living (SL) homes. Group training homes are community-based, residential facilities that...

National Direct Support Professionals Week 2022

National Direct Support Professionals Week is September 11 - 17, 2022.  This is a week to recognize and show appreciation for the work of providers who are supporting individuals with developmental and intellectual disabilities to maximize their independence. Direct Support Professional (DSP) is an umbrella term that includes many different titles and functions, including direct...

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