Question:
Female, 23 years old, UPD subtype
My 23-year-old daughter with UPD is just now developing some food-foraging behaviors. I am assuming this is not uncommon, but I am just wondering if this is typical to start at this age. We have never locked our cabinets because we never had to, so I am wondering if this is the direction we are headed. Thank you so much.
Nurse Lynn’s Response:
Food-seeking/foraging behaviors are indeed common in individuals with Prader-Willi Syndrome and can emerge at different stages of life, including adulthood. While many people with PWS begin to show these behaviors during adolescence, it’s not uncommon for them to appear later, especially as they navigate different life changes.
The onset of these food-seeking/foraging behaviors can sometimes be influenced by factors such as hormonal changes, stress, or shifts in daily routines—whether at home or in other environments. It’s perfectly normal for families to adjust to these behaviors over time, and as you mentioned, some people may not initially need to secure food, but as the behaviors become more pronounced, increased precautions can be necessary.
I would start by having an open, understanding conversation with your daughter about this change. You can work together to create a food security plan that feels supportive and nonjudgmental. This plan could include locking the refrigerator, other food storage areas or having cameras. There are loads of different options for food security. By doing so, you can ensure that she feels involved in the process and that any adjustments made are in the best interest of everyone’s well-being.
Resources:
https://www.pwsausa.org/resources-food-security/
https://www.pwsausa.org/wp-content/uploads/2021/01/Food-Security-Locks-and-Alarms-ED-20.pdf
Do you have a question for Nurse Lynn? Submit your question here:
Share this!