Prader-Willi Syndrome: Adulthood 101
With a presentation by Elizabeth Roof, M.A., on Monday, February 22, 2016, at 7:30 p.m., EST. If you were unable to attend the 2015 conference, or missed this presentation while there, you will be glad to hear it now. In Prader Willi Syndrome: Adulthood 101, Ms. Roof will present on supports that seem to make things better as people with PWS get older, subtype differences, what to be on the watch for, and what you shouldn’t waste time doing! She will give some case studies about different psychiatric issues in aging adults and what helps. She will talk about how best to identify factors that make interventions more positive, give examples about different living/vocational situations and how/when they work best. Lastly, she will let parents know about taking care of your own emotional and physical health, balance, and how to go the distance.
The webinar will be recorded and available for viewing for one week after the live event. You must register in advance to receive the link to the recording. Registration is a two-step process. First you log in to the Event Brite site to pay the nominal fee of $20 for nonmembers and $10 for members. When you receive your confirmation of payment email, there will be a link for you to register at the GoToWebinar site. YOU MUST COMPLETE BOTH STEPS! If you are using a Smartphone or Tablet to register, you will need to download the GoToWebinar app first.
Most of our families are familiar with Ms. Roof. She is a senior research specialist at the Vanderbilt Kennedy Center and has been a licensed Health Service Provider in TN since 1994. She currently directs several research programs with children and adults with PWS with Dr. Elisabeth Dykens. You won’t want to miss this webinar!!
Click Here to register!!
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.