Give the Gift of HOPE This Holiday Season!
As we approach the end of 2024, we are filled with gratitude for your unwavering support. This year has been a time of innovation and growth for the Prader-Willi Syndrome Association | USA (PWSA | USA), and it’s all thanks to your engagement and generosity.
Sharing and Celebrating Our 2024 Achievements
Our 2024 D.C. Fly-In saw 150 advocates participate in over 130 congressional meetings, resulting in a letter of support for PWS signed by 27 elected officials.
The voice of individuals with PWS was amplified by the community’s historic Voice of the Patient Report and PWS Advocacy Coalition Petition to the FDA, advocating for Soleno Therapeutics’ DCCR new drug application and future treatments, AND the re-launch of our Adults-with-PWS Advisory Board.
We helped over 50 teens and adults living with PWS develop essential communication skills to better navigate relationships through our BOSS Program.
We launched the PWS United Podcast to share resources and stories, fostering community connection. Our first-ever Residential Providers Conference brought together over 100 providers to improve care for individuals with PWS.
Looking Ahead to 2025: Celebrating 50 Years of Impact
As we approach our 50th anniversary in 2025, we reflect on our progress and renew our commitment to the PWS community. To advance this important work, we need your support.
Join Our 2024 Angel Drive
Make a gift to the 2024 Angel Drive Campaign by December 31st! BONUS: If you make your contribution before December 15th, you’ll be entered into a drawing to win one of four incredible prizes: an Apple Smart Watch, a $300 Amazon gift card, Customizable PWS Nike shoes, or a PWSA | USA Swag Bag!
By giving your gift of HOPE, you’ll help us remain a lifeline, ensuring families can access vital resources, from critical support services to advancing research, advocacy, and awareness. Your tax-deductible gift guarantees that PWSA | USA can continue providing hope, 24/7/365. Thank you for being part of this journey and for your unwavering commitment to the PWS community.
Hope in Action Video Series
We are excited to launch our Hope in Action video series, which will share powerful stories of resilience and hope from the Prader-Willi syndrome community, highlighting the many ways PWSA | USA is making a difference. From school advocacy and medical crisis support to empowering grandparents and bridging international connections, every story is a reminder of the power of community and the hope we can offer together.
Created as part of our 2024 Angel Drive, this series celebrates the support PWSA | USA provides to families, caregivers, and individuals with PWS—and the difference you can make by joining us in giving the Gift of HOPE.
Click below to watch the first installment of our Hope in Action video series! Hear firsthand from Sue Colon (mom to Shealynn, 4, living with PWS) and CEO Stacy Ward how our dedicated team works alongside families to help ensure every child has the support they need to succeed in school.
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