ECHO 4 PWS: Cardiac Concerns
When: Thursday, August 15, 2024 at 5:00 PM EST
Where: Virtual/Zoom Video
This series is for health care providers only
Register below for our next ECHO 4 PWS webinar, “Cardiac Concerns with Dr. Jim Loker.”
PWSA | USA's - ECHO 4 PWS Health Care Provider Series
PWSA | USA launched our new Health Care Provider Project ECHO Series, ECHO 4 PWS, in 2023. We are proud to offer this opportunity to health care professionals who work with patients affected by Prader-Willi syndrome (PWS) and to be the first PWS organization to implement Project ECHO® in the United States.
Our next healthcare ECHO topic will focus on Cardiac Concerns presented by Jim Loker, MD, Clinical Professor, Department of Pediatric and Adolescent Medicine at Western Michigan University, followed by a 20-minute case study on PWS (speaker to be determined).
PWSA | USA’s Health Care Provider Project ECHO Series will touch on a wide range of healthcare topics in the PWS space and will be available for all health professionals across our network including (but not limited to): Geneticists, Pediatric Endocrinologists, Neonatologists, Nurses, Pediatricians, Endocrinologists, Psychiatrists, Psychologists, Social Workers, Occupational Therapists, Pulmonologists, Orthopedic Surgeons, Dieticians, Physiotherapists, Speech and Language Therapists, Medical Students and Professional Caregivers.
While this ECHO series is only for health care providers to attend, recordings of the webinars are available for our PWS families to view HERE.
Scroll below to find more ECHO 4 PWS webinar opportunities.
Speaker
Jim Loker, MD, Clinical Professor, Department of Pediatric and Adolescent Medicine at Western Michigan University
Upcoming ECHO 4 PWS Webinars
ECHO 4 PWS Webinar: Feeding and Swallowing
September 11, 2024, at 5:00 p.m. EST
Join PWSA | USA for our September ECHO 4 PWS Webinar, Feeding and Swallowing with Roxann Diez Gross, PhD, CCC/SLP, and Ann Scheimann, MD, MBA. This presentation is designed to enhance the knowledge of the assessment and management of the clinical features of PWS and increase the clinical knowledge of the management of feeding /swallowing issues using care-based learning through a multi-disciplined approach.
ECHO 4 PWS Webinar: Exercise Physiology
November 11, 2024, at 5:00 p.m. EST
Join PWSA | USA for our November ECHO 4 PWS Webinar, Exercise Physiology with Dr. Daniela Rubin. More details coming soon!
LEarn More about PWS Research
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On June 28, 2024, Soleno Therapeutics announced the company officially submitted a New Drug Application (NDA) to the U.S. Food and Drug Administration (FDA) for DCCR (diazoxide choline) extended-release tablets. This new treatment targets Prader-Willi syndrome (PWS) in individuals aged 4 and older with hyperphagia. CEO Anish Bhatnagar, M.D., says, “Submission of the DCCR NDA to […]
Help Needed: Caregivers of Children with Prader-Willi Syndrome and Repetitive Verbal Behavior
Kasey Bedard, PhD, and her team at The Chicago School are seeking caregivers of children diagnosed with Prader-Willi Syndrome (PWS) who exhibit repetitive verbal behavior for a research study at The Chicago School. This study, part of a dissertation project, aims to test interventions that caregivers can implement at home. Study Details: – Duration: 2-3 […]
Fueling Hope: Aardvark Therapeutics’ $85M Boost Powers Breakthrough PWS Treatment
Aardvark Therapeutics has just hit a major milestone with an exciting $85 million Series C financing round! Led by Decheng Capital, with additional participation from several investors, including PWSA | USA, this funding is set to drive the development of ARD-101, a groundbreaking treatment for hyperphagia in Prader-Willi syndrome patients. ARD-101 showed promising early trial […]