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Latest News
Navigating Peer Relationships with Prader-Willi Syndrome
As parents and caregivers, we want to see our loved ones successful in their relationships. Making connections with peers is a valuable part of adolescence and being in school. Some of the characteristics of PWS can make this challenging. Struggles with transitions, egocentrism, slower processing, excessive daytime sleepiness, and, of course, food concerns, can sometimes...
Ask Nurse Lynn: Testosterone Injections and Hypogonadism
Question: Male, 41, Deletion Our son is getting a new housemate, male, age 43, also has PWS. He’s getting testosterone injections biweekly. No doctor has ever suggested that to us for our son. What are the benefits and what are the concerns of testosterone injections in adult male PWS individuals? Thank you! Nurse Lynn’s Response...
Ask Nurse Lynn: Getting Back on Track with Weight
Question: Female, 33, Deletion My daughter went through several programs of weight loss in Pittsburgh. Their program saved her life. They don’t offer that program anymore. Are there any other programs that can help us with her weight? She’s very heavy again. When Covid hit, it got out of control again and I feel like...