Whether it’s 90 degrees and humid or 70 degrees and cloudy, summer is just around the corner. That means it’s time to prepare and plan your summer fun! For individuals with Prader-Willi syndrome, summer fun must include plans for heat precaution as they often have difficulty regulating body temperature and can overheat easily.
Here are some tips to help keep your loved one safe when the temperature rises:
- Capitalize on the cooler temperatures in the early morning and evening and plan your outdoor activities during those times.
- Carry an umbrella with you to block out the sun’s direct rays.
- Always wear sunscreen!
- Keep frozen water bottles or cold drinks with you at all times.
- Cool your car down before getting into it.
- Keep battery operated fans in your car and larger fans in your home.
- When traveling, keep a cooler with ice packs, wet towels, and water bottles with you in case of a heat-related emergency.
- Technology is advancing and that includes body cooling technology. Invest in a cooling vest, frogger towel, or cooling gel pads which can all found in your local sporting goods store.
Despite taking precautions, your loved one may experience a heat-related problem such as heat exhaustion or heat stroke. Heat exhaustion is an urgent situation that includes heavy sweating, rapid pulse, dizziness, fatigue, goose bumps, and often nausea and headache. A person with PWS might not experience all these symptoms, so look for red cheeks, exhaustion, and fatigue. If you suspect your loved one is has heat exhaustion you must work quickly to cool them down. Move them into a cool place with good air circulation, remove any wet clothing, and use cold, wet towels to cool the skin. Focus on the arm pits, neck, and groin as the largest blood vessels are in those areas.
Heat stroke is an emergency and requires immediate medical assistance…Call 9-1-1! When someone is suffering from heat stroke they are no longer sweating, and they might be confused and even collapse. While waiting for first responders to arrive, continue all efforts mentioned above to rapidly reduce body temperature.
We hope you have a wonderful summer! Please send us your summer fun pictures to dyoung@pwsausa.org. Please be sure to complete this photo consent form and return it with your photos to the email address above.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.