2025 PWS Conference Mural Photo Submission

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With the 2025 International PWS Conference: United in Hope drawing near, we are thrilled to offer you an opportunity to celebrate your child’s inspiring legacy of hope!

At the conference site, the Arizona Grand Resort & Spa, we will set up a dedicated area to highlight our PWS community, enabling families to create cherished memories that will last a lifetime. Additionally, we want to pay tribute to those PWS warriors who may not be able to attend the event. Even if you can’t join us in person, we encourage you to share a picture of your loved one in their “Sunday best” to let us feel your presence. These photos will be compiled to craft a surprise mural for the occasion.

PWSA | USA is committed to providing support to individuals and families impacted by Prader-Willi syndrome. Our goal is to showcase the diversity and beauty present within the PWS community. Kindly fill out the Photo Release form provided below and submit it along with your photos. While we have ample space to accommodate photos, depending on the response and the volume of submissions, we may not be able to include all images in this special mural Nevertheless, we eagerly anticipate utilizing these pictures in future projects to continue highlighting our incredible PWS community.

We are excited to work together with you and transform these photos into a display of hope that you can take pride in.

Parent/Guardian Name*
First Last
Name of Loved One Living with PWS
First Last
Age of Loved One Living with PWS
Email*
Phone
Are you attending the 2025 International PWS Conference?
- Yes
- No
Upload your photo(s):
Drop files here or
Tell us about your child’s inspiring legacy of hope (optional):
Authorization for use of information and media release
I agree to the policy
I hereby authorize and grant my full permission to the International Prader-Willi Syndrome Organisation (IPWSO), Prader-Willi Syndrome Association | USA (PWSA | USA), and the Foundation for Prader-Willi Syndrome Research (FPWR) to collect, use and store any of my personal information, including, without limitation, my likeness, image, voice, and/or statements (“the personal information”) for posting on the IPWSO, PWSA | USA, and FPWR websites or social media pages, to use for printed publications or for other purposes that may convey my identity (names may be used unless otherwise specified), diagnosis and other information.
I acknowledge by selecting the consent checkbox that:
1. I have the authority to grant this authorization and I hereby waive any rights of privacy and other cognizable claims, which I may have in connection with the use of the personal information on the IPWSO, PWSA | USA, FPWR websites or social media pages, in printed or other publications, or for other purposes. I understand that this consent is intended to release from liability all personnel of IPWSO, PWSA | USA, and FPWR and is valid unless and until revoked as described below.
2. I understand that the personal information provided to IPWSO, PWSA | USA, and FPWR may reveal sensitive health information about me, including health conditions, diagnosis, and treatment.
3. I understand that any personal information I share with IPWSO, PWSA | USA, and FPWR may be included in various media, including, without limitation, print and digital media, audio and video recordings, photographs, and written statements.
4. I agree that IPWSO, PWSA | USA, and FPWR shall own worldwide copyright and other intellectual property rights in any work product incorporating the personal information. Under this authorization, I assign and transfer to IPWSO, PWSA | USA, and FPWR full worldwide right, title, interest in and ownership of all copyright and other intellectual property rights in such work product without payment of any fees, royalties or other compensation.
5. I understand that I may revoke this authorization at any time by sending an email to PWSA | USA at events@pwsausa.org, which identifies the information covered by the revocation. Upon receipt of this notice, the organizations will endeavor to stop using this information within a reasonable time after receipt of such notice.
6. I acknowledge that I am consenting voluntarily and that I am not required to consent to this authorization as a condition of eligibility to receive any benefits or services from IPWSO, PWSA | USA, and FPWR. I understand that I may refuse to sign this form.
7. If I have any questions about my privacy rights under this authorization, I understand I may contact PWSA | USA by sending an email to: events@pwsausa.org. The terms of this authorization are not linked to any other agreement, nor to the term of any other agreement, and the terms of this authorization will survive until a request for revocation is submitted as described above.