PWSA | USA Board of Directors member John Lens hosted the 13th Annual Hunter Lens Golf Tournament alongside his family on October 1, 2022 in support of the organization and in honor of his son, Hunter, who is living with PWS.
"On October 1st, the we hosted our 13th annual Hunter Lens PWSA Golf Event in Lakeville, MA for family, friends, and colleagues to support families in need. Even with Hurricane Ian's rain showers throughout the day, the weather couldn't stop 100 plus golfers and many families join us for dinner, a raffle, and many laughs. One of the highlights of the day was that Hunter was able to meet a younger boy, Lincoln, who also has PWS, and Joe Gill whose brother Gavin has PWS as well. It is not often that Hunter has the chance to be with other families who are like him and his own family. This is one day Hunter will never forget. "
- John Lens
Scroll below to find a photo gallery from the event and click HERE to read Hunter's story.
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Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.