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Recommended for Teens and Adults with PWS and
their Parents and Caregivers.
“Prader-Willi Syndrome Is What I
have , not Who I am!”
by Janalee Heinemann
Our
heartwarming new 70 page book is the first ever
collection of writings by people with the
syndrome-for others with the syndrome-and for
all who want to understand what it is like to
live with the syndrome. It is a window into the
feelings of all of our young people with PWS-and
a light reflecting all of their beauty and
courage. This book will be appreciated by all
older children and adults with the syndrome, and
is a “must” for all caregivers, providers and
teachers of our older children. A PWSA (USA)
publication, 2004 70 pages Member cost $10,
non-member cost $15 plus shipping. Call our PWSA
(USA) office at 1-800-926-4797 to order or
Click here to order
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