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Mission statement

Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

Vision Statement

  • We will provide emotional support to families and caregivers, and nurture a sense of hope, strength and connection as we strive together to improve the quality of life of individuals with Prader-Willi syndrome.
  • We will take a leadership role in supporting and stimulating research, which will ultimately lead to a cure.
  • We will provide education and resources in order to improve the quality of life for everyone with the syndrome as well as the people who support them.
  • We will instill a sense of compassion and understanding through our dedication to providing awareness and enlightened knowledge about the syndrome.
  • We will secure the resources necessary to accomplish our goals.
Furthermore, we believe the research findings related to PWS will significantly impact the understanding of obesity and appetite regulation in the general population.

updated: 02/09/2012

 

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