PWSA (USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those affected by Prader-Willi syndrome.

Información en Español

In the spotlight

  • Join the 8th Annual Valentine’s Day Research Campaign today! It’s an easy way to support PWS research. Click here.
  • Extreme Makeover and Mystery Diagnosis to air stories on Prader-Willi syndrome in March 2010 Click here to read more.
  • House resolution passes recognizing PWS Awareness Month. Click here to read more.
  • 2010 Edition of Social Security's Redbook.  The 2010 edition of the Red Book, which serves as a general reference source about employment related provisions of the Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) programs is now available in English for review and download at http://www.socialsecurity.gov/redbook/ 
  • NIH awards $117 million for Rare Diseases Clinical Research Network including Prader-Willi syndrome research...  [click here]
    Participants Wanted!  [click here]
  • Growth Hormone NEW Consensus Statement..[click here]
  • East Meets The West is the title of the IPWSO 7th International Conference held in Tapei, Taiwan.  Click here to view a video inviting you!  Click here for a flyers about this conference.
  • Help our PWS Researchers Make Progress on the Syndrome. For many of them, they are dependent on your help. Please consider participating in one or more of their research projects.  Click here and join the PWS research team.
  • Regional Focus and Support Groups in your area. [Click here] to learn more.
  • Front Page News Archive  Items formerly on our front page that cannot be found elsewhere on our site may be kept in a news archive.
Updates
  • New Website Resource! PWS Overview and Management - Medical Home Portal Development, Utah Medical Center. Once you access this website and go to the section called “Diagnosis and Conditions” click on the different links. Dr. Merlin Butler, chairperson of our PWSA (USA) Scientific Advisory Board, reviewed and edited this website written for families and primary care physicians needing quick and accurate information. To access this site, [Click here]
  • Medical and research updates...[click for more]
  • SSI Resource

If you are in need of help or advice, please call (800) 926-4797 or email national@pwsausa.org.  We are here to help you!

 

 

 


 

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